CHARGE SYNDROME AUSTRALASIA
Connecting families with information, experts and other families.
Making the CHARGE Syndrome journey simpler and easier.
“We have so much to learn from people who have CHARGE Syndrome.
We can learn from their resilience, their strength of will, their determination to learn, their sense of humour and their unique charm.
They have been able to achieve these strengths while having to manage the day-to-day health, physical, communication and learning challenges
that this highly complex syndrome can bring.”
What is CHARGE syndrome?
Answers to your questions about CHARGE syndrome, causes, likely outcomes, and more.
Advocacy support for families and carers
Support for dealing with childcare, school, with health professionals.
Multi-sensory toys for the warrior welcome pack for babies.
Warrior welcome pack
We are creating gift packs to welcome new families into the CHARGE syndrome community, and to let them know they are not alone. Read more and see what’s in the pack.
Read the news
Here is all the recent news from our organisation and from our community.
Read our latest and previous newsletters.
CHARGE Syndrome Australasia cuddles logo
“Why I Am Me” book
Published in 2011 by CHARGE Syndrome Australasia.
“Why I Am Me” is a story about a boy called Sam who has CHARGE syndrome and his friend Jess.
“Why I Am Me” is a must read for those whose lives are touched by a person with CHARGE syndrome.
All profits from the sale of this book go towards improving the health and welfare of children and adults with CHARGE syndrome in New Zealand and Australia.
For bulk orders please contact the association to confirm quantities and shipping costs.
Profile pictures of the ten experts who contributed to the course.
Online course
Understanding CHARGE Syndrome is a free online course open to anyone. It consists of six modules, delivered by leading experts from around the world. It is designed to be completed over six-eight weeks, spending two hours per week.
Get Involved
Donate
Your donations help fund events and provide services for the CHARGE community.
Volunteer
Find out how you can volunteer to help support our CHARGE community.
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Stay up to date with our quarterly newsletter.
Read the latest Autumn 2023 Newsletter